Understanding the medicines information-seeking behaviour and information needs of South African long-term patients with limited literacy skills:
- Patel, Sonal, Dowse, Roslind
- Authors: Patel, Sonal , Dowse, Roslind
- Date: 2013
- Language: English
- Type: text , article
- Identifier: http://hdl.handle.net/10962/156676 , vital:40037 , doi: 10.1111/hex.12131
- Description: Although much health information‐seeking behaviour (HISB) research has been reported in patients with good literacy skills, little is known about HISB in patients with limited literacy skills served by under‐resourced health‐care systems. To investigate medicine information‐seeking behaviour and information needs in patients with limited literacy.
- Full Text:
- Date Issued: 2013
- Authors: Patel, Sonal , Dowse, Roslind
- Date: 2013
- Language: English
- Type: text , article
- Identifier: http://hdl.handle.net/10962/156676 , vital:40037 , doi: 10.1111/hex.12131
- Description: Although much health information‐seeking behaviour (HISB) research has been reported in patients with good literacy skills, little is known about HISB in patients with limited literacy skills served by under‐resourced health‐care systems. To investigate medicine information‐seeking behaviour and information needs in patients with limited literacy.
- Full Text:
- Date Issued: 2013
Using pictograms in a patient information leaflet to communicate antiretroviral medicines information to HIV/AIDS patients in rural South Africa:
- Authors: Dowse, Roslind
- Date: 2009
- Language: English
- Type: text , book
- Identifier: http://hdl.handle.net/10962/156817 , vital:40053 , ISBN
- Description: The objectives were to design a simple, illustrated patient information leaflet for the antiretroviral regimen of stavudine, lamivudine and efavirenz and to evaluate its readability and acceptability in the local Xhosa population. In order to achieve this, a further objective was to design and evaluate illustrations to include in the patient information leaflet which were culturally acceptable and well interpreted. Illustrations or pictograms were designed to illustrate selected instructions appearing in the patient information leaflet and were individually tested in 30 Xhosa participants who had a maximum of 8 years of formal schooling. Results were used to improve the pictograms for inclusion in the patient information leaflet. The patient information leaflet was designed and tested in sixty Xhosa participants with varied levels of education who had stated they could read. Demographic data were collected and they were then asked to read the patient information leaflet, available in both English and isiXhosa, and a series of questions was asked to assess its comprehension and acceptability. The overall average rate of understanding was 95. Six of the 20 questions were located and understood by all participants, and only two questions resulted in less than an 85 correct response. Physical appearance and quantity of information were highly rated and all participants were enthusiastic about the inclusion of pictograms.
- Full Text:
- Date Issued: 2009
- Authors: Dowse, Roslind
- Date: 2009
- Language: English
- Type: text , book
- Identifier: http://hdl.handle.net/10962/156817 , vital:40053 , ISBN
- Description: The objectives were to design a simple, illustrated patient information leaflet for the antiretroviral regimen of stavudine, lamivudine and efavirenz and to evaluate its readability and acceptability in the local Xhosa population. In order to achieve this, a further objective was to design and evaluate illustrations to include in the patient information leaflet which were culturally acceptable and well interpreted. Illustrations or pictograms were designed to illustrate selected instructions appearing in the patient information leaflet and were individually tested in 30 Xhosa participants who had a maximum of 8 years of formal schooling. Results were used to improve the pictograms for inclusion in the patient information leaflet. The patient information leaflet was designed and tested in sixty Xhosa participants with varied levels of education who had stated they could read. Demographic data were collected and they were then asked to read the patient information leaflet, available in both English and isiXhosa, and a series of questions was asked to assess its comprehension and acceptability. The overall average rate of understanding was 95. Six of the 20 questions were located and understood by all participants, and only two questions resulted in less than an 85 correct response. Physical appearance and quantity of information were highly rated and all participants were enthusiastic about the inclusion of pictograms.
- Full Text:
- Date Issued: 2009
Using visuals to communicate medicine information to patients with low literacy:
- Authors: Dowse, Roslind
- Date: 2004
- Language: English
- Type: text , article
- Identifier: http://hdl.handle.net/10962/156958 , vital:40073 , https://journals.sagepub.com/doi/pdf/10.1177/104515950401500106
- Description: The patient was adamant that she had taken her medicine as instructed, pointing to the visual (Visual 1) illustrating the instructions to endorse this. Via an interpreter, she communicated that she took her tablet three times during the day and once at night (which was correct), but only on those days when the sun was shining (not on cloudy days) and the moon was visible (depending on both cloud cover and phases of the moon).
- Full Text:
- Date Issued: 2004
- Authors: Dowse, Roslind
- Date: 2004
- Language: English
- Type: text , article
- Identifier: http://hdl.handle.net/10962/156958 , vital:40073 , https://journals.sagepub.com/doi/pdf/10.1177/104515950401500106
- Description: The patient was adamant that she had taken her medicine as instructed, pointing to the visual (Visual 1) illustrating the instructions to endorse this. Via an interpreter, she communicated that she took her tablet three times during the day and once at night (which was correct), but only on those days when the sun was shining (not on cloudy days) and the moon was visible (depending on both cloud cover and phases of the moon).
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- Date Issued: 2004
Written medicines information for South African HIV/AIDS patients: does it enhance understanding of co-trimoxazole therapy?
- Mansoor, Leila E, Dowse, Roslind
- Authors: Mansoor, Leila E , Dowse, Roslind
- Date: 2007
- Language: English
- Type: text , article
- Identifier: http://hdl.handle.net/10962/156860 , vital:40059 , https://0-doi.org.wam.seals.ac.za/10.1093/her/cyl039
- Description: Written information to promote patient education is being increasingly recognized as an integral part of quality health care. The main objective of this study was to evaluate the effect of distributing a patient information leaflet (PIL) on knowledge acquisition and recall. Two different PILs were designed for co-trimoxazole tablets: a simple, shorter PIL that incorporated pictograms and text and a text-only PIL that was longer and more complex. Human immunodeficiency virus-positive participants on chronic co-trimoxazole therapy were enrolled from five local primary health care clinics in Grahamstown, South Africa, and were randomly allocated to a Control Group (no PIL), Group A (text-only PIL) or Group B (simple PIL with pictograms).
- Full Text:
- Date Issued: 2007
- Authors: Mansoor, Leila E , Dowse, Roslind
- Date: 2007
- Language: English
- Type: text , article
- Identifier: http://hdl.handle.net/10962/156860 , vital:40059 , https://0-doi.org.wam.seals.ac.za/10.1093/her/cyl039
- Description: Written information to promote patient education is being increasingly recognized as an integral part of quality health care. The main objective of this study was to evaluate the effect of distributing a patient information leaflet (PIL) on knowledge acquisition and recall. Two different PILs were designed for co-trimoxazole tablets: a simple, shorter PIL that incorporated pictograms and text and a text-only PIL that was longer and more complex. Human immunodeficiency virus-positive participants on chronic co-trimoxazole therapy were enrolled from five local primary health care clinics in Grahamstown, South Africa, and were randomly allocated to a Control Group (no PIL), Group A (text-only PIL) or Group B (simple PIL with pictograms).
- Full Text:
- Date Issued: 2007
‘Yummy or crummy?': the multisensory components of medicines-taking among HIV-positive youth
- Hodes, Rebecca, Vale, Beth, Toska, Elona, Cluver, Lucie, Dowse, Roslind, Ashorn, Mikael
- Authors: Hodes, Rebecca , Vale, Beth , Toska, Elona , Cluver, Lucie , Dowse, Roslind , Ashorn, Mikael
- Date: 2019
- Language: English
- Type: text , article
- Identifier: http://hdl.handle.net/10962/156663 , vital:40036 , DOI: 10.1080/17441692.2018.1504103
- Description: The global rollout of Antiretroviral Treatment (ART) has revealed an urgent need to understand the medicines-taking practices of HIV-positive adolescents. In the last decade, the literature on the social determinants of health has broadened the evidence-base on ART adherence. Interdisciplinary studies have expanded conceptions of medicines-taking beyond clinical or health systems frameworks, recognising the importance of socio-structural conditions and of patients’ beliefs and experiences. Participatory research techniques which foreground the perspectives of adolescents provide greater insights still into their adherence. This article explores the use of participatory methods within a broader study on the social determinants of ART adherence among HIV-positive adolescents in South Africa. We describe how participatory methods were incorporated into this study (n = 1,059 in the quantitative baseline). We focus on an exercise, ‘Yummy or crummy?’, that explored the multisensory dimensions of medicines-taking, including their colour, smell, shape, and delivery mechanism. We describe two principal findings: first, adolescents’ preference for greater understanding of the chemical workings of medicines, manifested in their preferences for colour, taste and shape of medicines; and second, the vital relationship between sensory preferences and the social imperatives of discretion and confidentiality regarding HIV-status.
- Full Text:
- Date Issued: 2019
- Authors: Hodes, Rebecca , Vale, Beth , Toska, Elona , Cluver, Lucie , Dowse, Roslind , Ashorn, Mikael
- Date: 2019
- Language: English
- Type: text , article
- Identifier: http://hdl.handle.net/10962/156663 , vital:40036 , DOI: 10.1080/17441692.2018.1504103
- Description: The global rollout of Antiretroviral Treatment (ART) has revealed an urgent need to understand the medicines-taking practices of HIV-positive adolescents. In the last decade, the literature on the social determinants of health has broadened the evidence-base on ART adherence. Interdisciplinary studies have expanded conceptions of medicines-taking beyond clinical or health systems frameworks, recognising the importance of socio-structural conditions and of patients’ beliefs and experiences. Participatory research techniques which foreground the perspectives of adolescents provide greater insights still into their adherence. This article explores the use of participatory methods within a broader study on the social determinants of ART adherence among HIV-positive adolescents in South Africa. We describe how participatory methods were incorporated into this study (n = 1,059 in the quantitative baseline). We focus on an exercise, ‘Yummy or crummy?’, that explored the multisensory dimensions of medicines-taking, including their colour, smell, shape, and delivery mechanism. We describe two principal findings: first, adolescents’ preference for greater understanding of the chemical workings of medicines, manifested in their preferences for colour, taste and shape of medicines; and second, the vital relationship between sensory preferences and the social imperatives of discretion and confidentiality regarding HIV-status.
- Full Text:
- Date Issued: 2019